Posted in No category yet

Misconceptions about VIPs and blind people

Misconceptions about VIPs

(Visually Impaired Persons) and blind people.
What people may not realise is…
⚫ You don’t have to be totally blind to have a guide dog.
⚫ Not everyone with a symbol cane is totally blind.
⚫ You can say… Figuratively.. ‘I see’… Or ‘I see what you mean’. It’s all part of speech and conversation. They won’t think you are taking the mick.
⚫ People with low vision…. Don’t always… ‘Look like they have low vision’ or have any sight loss at all. If you maybe watched me long enough you would maybe guess. To look at me you would never know.
⚫ Can wear makeup and will have adapted how they have put it on and taken alot of time.
⚫ May have sunglasses on when nobody else has, due to photophobia (severe light sensitivity)
⚫ Those yellow glasses you see? They are to block blue light, subdue glare and give more definition.
⚫ Don’t want help unless they ask for it.
⚫ Be patient. It maybe frustrating whilst waiting for a VIP to look at something, pay by cash, look for something on their phone to show you, you may even want to do it for them… but believe me… It’s much more frustrating for us. Especially if we can sense that impatience.
⚫ My hearing hasn’t improved… Yet. Although I’ve always had superman like hearing. I do rely on my hearing more when I’m crossing the road as I don’t trust my eyes like I used to completely.
⚫ You might see someone with a guide dog look on their phone. Don’t be surprised. It’s not that they’re pretending to be blind.
⚫ Ask questions if you don’t understand. I personally would rather you ask than think… How can she see that.. But then not that. Maybe even ‘why can\’t you see very well?’ Than that old pearler… ‘you need glasses’.
⚫ Talk. Not just to their sighted friend instead if they are with one. Unless they have the symbol cane with red stripes (deaf & blind) they can hear you. Just lightly touch them on their arm and get chatting.
⚫ Please don’t touch or stroke the Guide dogs while they are working. They are the eyes of the person handling them. They are focused and concentrating to help the VIP or blind person get around safely. Wait to have a chat with the person and a fuss of the doggo if at a cafe for example. When they are off duty.
⚫ Don’t refuse if they link arms with you. Might be especially struggling that day or even want to let that part of the brain to shut off for a bit so they can relax, without concentrating most of the time.
Feeling you can fall any minute isn’t nice. Just an extra bit of reassurance.
⚫ Someone most likely don’t … ‘You need glasses mate’… If they seem to have their phone at the end of their nose whilst reading it. It’s the best way for them to see, for them. They probably haven’t… ‘forgot your glasses?’ either. It’s not funny also if your see someone do this.
⚫ This isn’t just ‘bad eyesight’ that can be corrected ultimately by glasses.
⚫ Glasses don’t correct blind spots.
⚫ We don’t wear our sunglasses all the time to… ‘look cool’ 😎
⚫ Leave them to cross the road on their own unless they ask you. Ask by all means. Don’t grab someone or tell them to run. Leave us to just do what we normally do on our own.
We will probably be the last over the road, have patience.
⚫ Just have patience ☺
Posted in Funny Stories, How I'm Adapting

Hard to explain, hard to understand

This condition is very hard to explain… Very hard to understand if you haven’t got it.

I can see distance better than close up. So you’re maybe puzzled why I spot your purse, bag, etc on the floor, but ask you to read something for me.
I might stop to pick something off the floor that you haven’t seen, but believe me, if it’s small, about 99% of the time it’s not what I thought it looked like, I’ve picked leaves, bugs, pen tops, foil and far worse up before now thinking it’s a penny or something I’ve dropped. 😔
I will have to stop it… Sometimes it’s not good and makes me jump.
I will have a small lamp on inside and live in the dark basically. Now you might think no wonder I can’t see but, light hurts my eyes so badly now, that I have to have a soothing light on. Like my salt lamp.
I can see a bird on the bird table outside. but you show me one in a book or a photograph closely, then I will have trouble seeing it.
You might think well you have make-up on? Yes and a half an hour job rushing doing it before I went out even a few years ago has now turned into putting makeup on in natural light in the afternoon, with a big mirror, magnifying mirror, alot of staring making sure eye pencils are the ones I want.
The eyes take the longest to do. I now need alot of time to put this on. I don’t always use mascara now as it’s like brushing the air. Eye pencil is an exact, painstaking science to me. Why do I bother? Why shouldn’t I? It makes me feel better and more like me. I don’t bother through the day, unless I go out. It is alot nowadays, to do this long winded routine every day.
People think that my glasses help completely. They make the words sharper, enough to read, but won’t fill in blank spots. I can’t even see the blank spaces until they block out part or the whole of a word. Then I know they are there. Sometimes I have to move the phone around to see. Glasses ultimately will stop working for me one day.
Looking above something and moving my eyes around, especially in the dark, is when something will come into view to see it so I can pick it up. This is called Eccentric Viewing. You can have training for this but my eyesight started to do this on their own out of necessity.
At first I felt people thought I was making it up because of all this… I couldn’t explain it properly as I didn’t know enough about the condition I’ve always had unknowingly.
It was thrust at me out of the blue with little help and direction from the doctors. It was more or less.. ‘you got this, there’s nothing we or you can do…off you pop’
Really ought to get into the habit of taking photographs of signs so that I can read them myself on my phone. Although that is a pain as I need a bigger screen ideally and I really don\’t want to be buying a screen reader or taking my tablet out… (Still a little hiding it there I think) … I’m not ready to do that yet.
Posted in How I'm Adapting

Lip Reading

Woman looks angry with three friends as they are laughing behind her, and one has a map

Lip Reading

I was talking to my friend yesterday, and we were laughing about how… when we don’t want to anyone to hear what we are saying, we start doing the moving the mouth without much sound so you have to lip read thing.
I’ve never been able to lip read, so miss out on the gossip or the laughing as I haven’t a clue ☺
I usually get the response… ‘we will tell you when we get outside’, unless someone whispers me it.
But often they have forgotten and we have moved on to something else.
It’s not unusual for them to do this then crack out laughing. And I just say as I’ve said for 20 plus years.
‘I STILL CAN’T LIP READ!’
So we got to wondering, maybe this is the reason why. Macular dystrophy is there when you are conceived and deteriorates through the years.
It does make me laugh when we all do it…and I still have to give the same response, time and timely again. Think I always will ☺