Posted in Progression updates

My progression so far… #2

Image with text: 20/60 left eye, 20/80 right eye

My progression so far…#2

Previously

⚫ May 2015… At diagnosis. 20/20 best corrected (ie… With distance glasses)
⚫ 21st September 2017… 20/30 vision best corrected.

Latest eye test

⚫ 27th September 2019…
My right eye best corrected, is 20/80.

My left eye best corrected, is 20/60.

Still waiting for the test results so cannot update my acuity at the moment. So this one still stands.

Alot of Changes since I first made the #1 list.

New additions

⚫ A little more blurry now.

⚫ Peripheral vision is now compromised. Waiting for results of 3 tests.
⚫ Photophobia.
⚫ Blank peripheral spot that means I trip over the doggo when walking. Have to be extra careful.
⚫ Developing a squint when looking into a camera, photos taken. Don’t know if I have one while looking at someone.
⚫ Eyesight now not good enough to drive. Consultant advised me to stop driving, whichever I have. After my latest eye test results.
⚫ Feeling coins more.
⚫ Using hearing more before I cross over roads.
⚫ Don’t trust what I’m seeing alot of the time.
⚫ Dusting and washing pots is getting longer as I have to concentrate.
⚫ Cannot always see a photograph even when it’s made larger. Often have to be told what it is I’m seeing then sometimes it ‘clicks’.

Below is my first list.

My Progression so far #1

Posted in Hospital Appointments, Progression updates

So what problems have they found since 2015?

Cartoon eyes doctor pointing to square with them words Diagnosis

In a roughly roundabout ascending timeline order ☺ …

⚫ Macular Dystrophy.

⚫ Pigment epithelial detachment (ped). Small. Both eyes.

⚫ Astigmatism.

⚫ Photophbia (extreme light sensitivity).

Will update this later if needs be.

Posted in Before Diagnosis, Glasses, Hospital Appointments

How my Macular dystrophy was diagnosed

How I was diagnosed with Macular Dystrophy.

The first time I had an inkling something was wrong before my diagnosis, In my case, it wasn’t a big fancy opticians, wasn’t a specialist. The answer may surprise you ☺.

After suddenly finding myself not being able to read the newspaper one day, and only being able to read the headlines, after being completely fine the week before. It was whilst I was shopping in Asda that I saw they had an opticians in store.

Years ago I had been to specsavers, because I felt I needed an eye exam as I hadn’t had one for years. The dystrophy would have been in there, but wasn’t found.

I had my eye test and she explained that my macular was thin for my age. This needed looking at. She referred me to the eye centre there and then.

I went to that appointment. Had the tests beforehand, then went to see the consultant that explained I had Macular Dystrophy and was born with this condition.

So, there you go.

If you are worried about your eye health in anyway, best get yourself an appointment to be on the safe side as you never know what’s happening and sight is taken for granted.

Thank you to the lady who referred me that day, it set in motion a diagnosis for me.