I have written an article for Rare Disease UK. Depicting my life with Macular Dystrophy.
The link is below if you care to take a look.
An honest warts & all sightloss blog. I'm living with Macular Dystrophy. To track my progression and hopefully help others. What will happen next?…
I have written an article for Rare Disease UK. Depicting my life with Macular Dystrophy.
The link is below if you care to take a look.

Hi all.
Got my appointment with the low vision specialist at Bayfields opticians on 6th of July.
This is from a referral from my local sight aid charity.
Will be going to look at sunglasses and lots of magnifiers to see what suits me best. We will see. Or not see, as the point in going here is just that 🤭
Will update you all to explain what goes on here for anyone else waiting to go and is not sure what happens there.
First time I will have been anyway. So we can learn together.
Questions I’ve received so far from my website, fb and Instagram.
So last time I did this I took the strange, odd, plain weirdos out and didn’t post them.
It doesn’t bother me… I’m still going to answer them. So remember people. If you want me to answer a really odd question. I will! Haha!
Back then, I was trying to be a sensible, professional type blog, but then thought I just have to be more like me.
This time, here you go. This is what happens…
🟢 Jane – Who’s your favourite sister?
Me – You sis obvs.
🟢 Anonymous – You have a very good sense of humour! Are you really so positive? I find it very hard sometimes.
Me – So do I Anonymous! In my opinion though, and this is just my own. I cannot be worrying about stuff that’s out of my control. That’s not my own choice. If decisions are taken out of my hands, I will give up until there is some hope or I hear differently. Then I’ll fight. I can only put it out there for a miracle!
🟢 Anonymous – Would you rather be blind or deaf?
Me – Pardon? 😉
🟢 Micheal – What’s your accuity now please?
Me – Last measured (end of 2019) (20/60) Left eye, (20/80) Right eye. Both corrected with glasses whilst reading the chart. Will update the blog when I have more results.
🟢 Andrew – Can people with Stargardt get guide dogs?
Me – Yes. Like any person with visual impairments. If you fit the criteria and think it would help. Yes, you can apply.
🟢 Rav – Did your toenails fall off due to your charity walk?
Me – No. Feet completely fine. My hips though…
🟢 Anonymous – Will you marry me?
Me – At least ask me out for a drink first 😉
🟢 Weirdo – Do us no we can cure md lady? Etc, etc, link, etc…
Me – No you can’t. Horrible how these people hunt you out to try to extort money from you. There’s no cure or treatment. As yet!
🟢 Angry Person – If your blind how cn you make people? C*** (I’ve censored this)
Me – First of all, It’s you’re. Secondly, I’m not blind. Never said I was. Thirdly, Not a clue what you are on about 🤔 Please learn to spell and use grammar.
🟢 Another weirdo – Were you live👌🍆
Me – Planet Earth.
🟢 Angry Person #2 Haaaa ur blind
Me – Which charm school did you fail from fella? Please read my blog properly. You may educate yourself.
Update…
Thank you for a few messages I’ve just got after posting this.
No. I’m not going to ‘out’ their names or aliases. That isn’t my style at all. I actually wish them well. These people are probably hurting somewhere down the line ✌️
Let’s concentrate on the positive ☺