Posted in Low Vision Clinic

Low Vision Clinic Appointment

I’ve been to my Low Vision Appointment last week and collected quite a bounty of useful tech.

PICTURE DESCRIPTION Picture of Bayfields bag full of boxes of useful gadgets

I was led into a back room and then we discussed how I ended up in this room. Being assessed for what would suit me. I explained my difficulties so far and what was concerning me most (The Sun).

First up was magnifiers. A pocket one for reading a few words i.e. Clothes sizes, price tags, small print on packaging. This is an easypocket by Eschenbach.

Then there is a small handheld magnifier with light that we discovered I can only use by shutting one eye or there words jumble up. together. This is a Mobilux led by Eschenbach. It also come with a stand that you can use to do close up work like painting my fingernails with polish. I did this at the weekend and it was so much easier and also makes me feel better as they aren’t as ‘splodgy’ and all over the place as they once were.

Then there was a large handheld magnifier. A Ruby HD by Freedom Scientific. which I read a magazine, (Something I haven’t done for years also)and could even screenshot pictures to enlarge.

Once we had decided what would be best we went to the front desk to try out the sunglasses (cocoons) I tested amber and grey shades. The grey ones made the outside seem dull and just what i needed. The amber ones weren’t suitable as everything was still bright.

All this is for free. On permanent loan. You just have to take them back if they aren’t suitable or you don’t need them anymore. If you need them repaired, they will do that free of charge too.

This was a referral from my local sight aid charity.

I will post blogs for each item and take photos.

Posted in Research for a cure or treatment for us

A possible breakthrough?

WOW! This is amazing news for us all with genetic sight loss conditions and it looks hopeful.

Told you I was going to get away with it!

Now, let me not get ahead of myself.

That’s if I’ve actually got Stargardts Disease. I was just diagnosed with Macular Dystrophy which Stargardts is within that spectrum and the likely possibility as it is the most common form.

Must ask about genetic testing when I eventually see that consultant I’m still waiting to see for all my results. Which will be obsolete now.

The drug, known as LBS-008, is an orally administered tablet and has been trialled in patients over a 12-month period, as part of a phase two clinical study by US-based pharmaceutical company, Belite Bio.

It is hoped the tablet, which is now in phase three trials, will halt or slow the progression of Stargardt, one of the most common forms of inherited macular disease, which there is currently no treatment for.

Hopefully, if this works it may unlock the key to curing or treating the many other forms of Macular Dystrophy.

Read more below in the Macular Societys Facebook link.

Macular Society facebook page to read more.

Or, click link below for the original article.

Click here to read on Macular Society website

❤️ 🙏