These are all the countries my website has had visits from so far. Updated.
24!
14 more countries added since my first post about my map Stats.
Bear with me… I’m abit of a geek.
And since this blogs conception on the 30th August 2019 with my first blog post on this website.
Spreading awareness even further across the world ☺
In descending order :-
United Kingdom, United States, Norway, Canada, Singapore, Ireland, Sweden, Greece, Ecuador, India, France, Denmark, Jersey, Australia, Spain, Turkey, Albania, China, Hong Kong, South Africa, Portugal, Egypt, Nepal, Italy.
I didn’t ever think it would spread so far and wide. It’s interesting to see where people have read this from.
Thank you to everyone that has messaged, liked, followed, signed up on the website through WordPress and given me support over the time I’ve been wittering on about this. I do notice and appreciate every one of you. It has been lovely hearing your stories too. ❤️
PICTURE DESCRIPTION List of countries from screenshots of my stat pages on the website that have visited as explained in the post above.
PICTURE DESCRIPTION Picture of myself facing front. Red long hair and green eyes. A close up.
This is what Macular Dystrophy looks like.
My eyes have flaws in them with a genetic condition, but look totally healthy don’t they?
They haven’t altered. Don’t look strange. You cannot tell at all.
So you are looking at a pair of eyes that were made from a faulty eye gene passed from my mother and my father when I was made, during conception.
This is why it is rare. They had to each have the faulty gene… Carriers… (along with one that would have been healthy as, as far as I know, they didn’t have this condition) to pass on to me.
So I got both copies that were a mutant gene.
Luck of the draw. Like everything in life. I didn’t realise this until some decades later.
I have no healthy eyeball genes to pass to my son. So he will nailed on have a mutant, faulty gene from me. Which at the very least makes him a carrier for Macular Dystrophy.
If his father has passed on a healthy one he stays a carrier. If it’s mutant. He’s the same as me.
This is how it transfers from person to person.
This is why research is vital.
And there is positive news ☺
I’ve always said there is hope!
Anything is possible in life. We never know what’s around the corner 🙏 💜
Stargardt research. Potential therapy on the horizon for inherited retinal disease.
Prof. Carel Hoyng, A professor of ophthalmology from Radboud University, The Netherlands, is involved with ongoing gene therapy trials in Stargardt disease.
Research is going into being able to repair the RNA mutations, with the next step being that they will go into clinical Phase 1/2, probably in about a year. At the moment the stage they are at is in talk studies. The next phase after that is to go to in-patients.
An RNA therapy is designed to correct the mistake, or mutation, in the RNA of someone with a genetic disease. By correcting the mistake, the RNA can then be used to create the protein that the cell needs, taking away the underlying cause of the disease.
Ribonucleic acid (abbreviated RNA) is a nucleic acid present in all living cells that has structural similarities to DNA.
If everyone can keep their fingers crossed please that would be smashing🤞🏻
Sometimes you may see me tilting the phone or whatever I’m looking at. This is because of the tiny blind spots.
This is called eccentric viewing which came naturally to me early on.
You can have lessons in this from the low vision clinic or the Macular Society offer it too.
The eyes try to fill the blind spots so words or pictures are sometimes hard to make out or become the wrong word or image, with interesting results now and again.
I’ve wrote about this. If you go to my websites search box on desktop, you can search for anything you like including eccentric viewing.
One Vision Blog 