Posted in Before Diagnosis, How I'm Adapting

Lucky

Please don’t think I’m feeling sorry for myself.
I’m not.
Never have.
I realise how lucky I am.
I’ve seen my son and nephew grow up. Seen beautiful views, been independent.
I will keep on seeing these for a long time to come I hope.
I drove a car, for 29 years. A lot of people I’ve read about won\’t do that because this condition has started causing them problems far earlier.
There have been mothers blaming themselves because they have a little one at home that will never see the things I have. Parents aren’t to blame at all. Mine wouldn’t have even known they carried faulty genes they passed onto me.
There are parents with little tots that won’t see what there children look like when they get older. I have.
I still can see. I’m OK. This blog is to track it. For myself and for anyone that is interested in following my story. Which maybe their story too.
Facebook groups especially gave me an understanding of something I had never heard of. People who understood why I could see a leaf on a tree in the distance. But had to zoom in when looking on my phone.
It’s complicated. Hard to explain. Don’t really completely understand it myself.
I always appreciated the little things in life, just moreso now.
Posted in Funny Stories, How I'm Adapting

Needles and pins – central vision loss and threading a needle

Cross-stitch in frame with - and sew what if I can't sew in them middle
Asked my son to thread a needle for me because there isn’t really a good chance I will.
I had tried and tried and tried as I don’t want to rely on someone.
It was driving me bonkers.
Really frustrating.
I gave him the needle and thread.
‘Mum. What have you given me here? This is a pin 📍 with no bobble on it. There’s no hole’
😐
Posted in How I'm Adapting

If I had a pound for these comments…

⚫ But surely glasses will help?

⚫ They can do something though can’t they?

⚫ Forgotten your glasses love

⚫ Wear your glasses.

⚫ How big is your font on your phone…are you blind! (usually accompanied with laughter)

⚫ It’s not that sunny love! … while I have my sunglasses on while everyone hasn’t.
😕