The RNIB has a search facility to find groups near you.
These groups are usually advertised on notice boards at hospitals android Eye centres so look out for these.
If you click on the picture below, it will take you to their search page.
This is a rare disease.
I have a diagnosis of Macular Dystrophy. I’ve had no genetic testing as yet. This, being the most common, is suspected to become the likeliest form I have.
My son will be a carrier of the disease at the very least, as I have no ‘Healthy’ eye genes to give him from my side, So he will automatically get a mutated gene from me.
He seems OK though at the moment. He will be more likely to have no problems in the future, than the other option he has of having a macula condition.
⚫ It’s like I live in the crooked house. I’m certain windows, mirrors etc are on a slant. Even the floors. This now matches the slanted text I read.
⚫ The sweet spot I had that would appeared now and again has now gone. It was a very clear pinpoint with blurryness all around it. Then a split second later it would go back to how I see now. I was fascinated and thought those little moments were wonderful. You blinked and it was gone. Now it has.
⚫ When focusing without glasses my eyes cross. They are trying so hard. Photographs have been deleted because I never knew until seeing pictures I’ve taken. Now it makes me self conscious. I don’t want to see it. Maybe one day I will get used to that.
One Vision Blog 