Posted in How I'm Adapting, Useful Information

Talk Talk – My Talking watch

I’ve just put on my talking watching again from the RNIB (Link below at end of post)

I haven’t worn it for a while as, to be honest, I was always conscious of it going off and speaking randomly on it’s own.

Laughing would ensue when my wrist would catch the buttons and it would tell me the date or the time. In a loud mans voice! ☺

Doesn’t matter which hand I have it on.

Now, I’m open to tell people why I have it on if it does got off booming the information.

I can see why people have laughed or made a comment.

I don’t look visually impaired. Unless you spend time with me and pick up on other idiosyncrasies that are now part of my nature.

If I need to see the time I’ve only got my phone. Which has a big clock on the homepage if it’s clicked closed. Fair enough. If it’s open it’s so small, can’t see it. So thought this would be very useful out and about.

The RNIB shop has lots to choose from. Kids, adults and tactile watches too.

Picture of watch. Black strap and white watch face on my wrist.
PICTURE DESCRIPTION Close up picture of watch on my wrist. Black strap and white watch face.

Link to the RNIB watch shop website

Posted in Step around The World Challenge

My fundraising pack is here

My fundraising pack has come from the Macular Society today. Thank you Susie ☺

Fundraising pack of stickers, t-shirt, passport, newsletter and thank you note.
PICTURE DESCRIPTION picture of fundraising pack. Sticker passport, stickers, t-shirt, newsletter, thank you note.

I’ve filled some of my sticker circles up thanks to the lovely generosity of people already.

PICTURE DESCRIPTION Stickers put on passport card.

I will fill the steps stickers when I’ve completed my challenge.

I will wear my t-shirt with pride ☺ it will remind me what I’m doing this for.

VIDEO DESCRIPTION Picture of pack with cartoon image of me with long red hair with arms raised.

You betcha I’ve already got the Rocky IV training montage music ready for the last push around the Lake.

Posted in Research for a cure or treatment for us

Gene editing Stargardt’s Disease

Latest groundbreaking research into gene editing for Stargardt’s Disease.

Link to Macular Society Facebook Post

Hopefully this will slow progression of the faulty gene or potentially stop it in it’s tracks altogether. 🙏 🤞

The most common form of the group of Macular Dystrophies.

This has been completely funded by Macular Society and RetinaUK.

Please help me, to help them succeed! ☺

My fundraising page for Macular Society