One Vision Blog

Any Questions #2 ?

Posted on 11th May 202211th May 2022 by One Vision

PICTURE DESCRIPTION Picture of girl with red hair stood up with question marks around her head.

This blog isn’t just about me rambling on. It’s about you lot as well.

The sighted people, the people within the Macular Dystrophy rainbow of conditions, the family and friends that have a loved one with this condition. Each and everyone of you that read, follow, like, message me or comment, I’m so thankful for you each and every one of you. Means alot! 💜

I know if you haven’t got this condition and reading this blog to understand more due to a loved one having this, or you have this condition yourself, it is hard to understand. Hopefully by reading this blog, it’s gives you some insight to what we are dealing with here.

All of you have really stuck in there. We are all learning together as we go on.

Please remember though. Everyone is different. This may not be the way for some people with exactly the same condition as myself. There will be similarities and alot of ‘yeah, I do that’.

The progression maybe further on after 7 years than me, or maybe less. When I first googled for information (don’t Google ☺) I was hell bent on seeing how other people were coping years later. Obsessed. What their acuity was? Did you go blind? etc.

I’ve learnt since then, all that doesn’t matter. You can’t judge it. All you can do is hope for a slow progression of the condition. With long periods of plateau.

I also really love hearing from you! You are all helping me personally by being here.

Do you want me to tell your own story here? It maybe useful to hear another story other than myself, or are you doing a sight loss fundraiser maybe? Or have your own similar blog you’d like to promote so we can spread the word and gain more awareness for us all? Let me know. I will happily write up a story introducing you. Please give me a message if you fancy it and we can work something out.

Also. If there’s any questions you want to ask if you don’t understand anything, something to have me answer personally, Q and A style (no question is a daft question) and no question is off limits.

Want something covered here? Let me know.

So message me or comment below with your questions and I’ll post a questions blog up about them. I will just use your first name or if you prefer you can be anonymous.

Funny Stories, Low Vision Clinic, Sight Loss Course, Useful Information

Referral to low vision clinic

Posted on 10th May 20229th Jun 2022 by One Vision

Referral to Low Vision Clinic

When I was on my Sight Loss Course, there were lots of magnifiers for us to look at.

From credit card sized ones. To bigger ones with more functions.

I learnt that the local sight aid charity (that I was with) that runs these sight courses and get togethers, can refer you to the low vision clinic for an assessment.

They can give you things such as magnifiers and canes to help you manage getting around and being able to cope with life being partially sighted a little bit easier.

Obviously I will be assessed to see what would help.

The lady that ran the course I’ve just been on is kindly referring me and is getting me some bump dots, so I can stop quessing what number the oven should be on. Stop washing my hair in conditioner, body wash, foot cream… Yep… Foot cream.

Link to my foot creme post

I can stick them little bumpy dot stickers on anything I need to.

On my make up,
When you’re putting red or purple lip liner on your eyes instead of popping eyeliner on. It’s annoying, then funny because your eyes look immediately sore due to the colour. Hard to get off though.

On my foundation bottles, I’ve put coloured nail varnish on the lid to show me which colour to use. I have 2. One for when I have false tan on, so it’s darker. I can pop some on there, so I know the difference.

So this doesn’t happen, and it has.

PICTURE DESCRIPTION Picture of red haired girl with orange face makeup holding a cocktail glass

Before Diagnosis

Before diagnosis – 7 years ago today

Posted on 10th May 202211th May 2022 by One Vision

Memory came up from Facebook today.

It’s 7 year’s ago today since I had my appointment at the opticians (Asda) for just an eye test and they discovered whilst looking into the back of my eyes that my macula was thin.

This set off the turn of events that led me to discover my Macular Dystrophy diagnosis.

The optician said she would have to refer me to the eye center in my home town.

18 days later I had that appointment.