Sightloss problems.

An honest warts & all sightloss blog. I'm living with Macular Dystrophy. To track my progression and hopefully help others. What will happen next?…
Sightloss problems.

Being in a couple where both of us have genetic eye conditions. Richard my better half, due to a genetic eye condition called Choroideremia, uses a white cane to get around, and Me, diagnosed with Macular Dystrophy, just basically falls about and wings it, we are prepared to come across some questions which we will gladly answer.
We’ve had some funny things happen to us in our time together.
Recently we went on a seaside trip to celebrate our anniversary.
We help each other as our conditions are sort of the opposite from each other.
We’ve sort of mastered getting around together. Though there are sacrifices and difficulties especially somewhere new.
It’s easy if we both really know a place like Scarborough.
So we walk into a pub as we wanted a drink before heading to the theatre.
(Brassed off as a surprise treat for Rich at the Stephen Joseph Theatre in Scarborough. Absolutely amazing. Definitely recommend it)
I was navigating us to a seat. Then Rich looks at the phone app or menu with his glasses on as it’s easier for him to read than myself, orders us both a drink.
So you can understand why we get some looks.
Sat down there’s no visible sign either of us have sightloss.
One fella came up. He had been partaking, with his friend, many of the drinks on offer and approached us. Proper wobble on.
Pointing to the folded cane on the chair he said and I quote…
“Are those drumsticks mate?”
Lots of mad waving by his friend and apologies.
Richard explained what it was and why.
He couldn’t stop saying sorry. We found it incredibly funny and told him not to worry.
Well at least of anything. One thing I’m trying to do out and about and with this blog is dispell misconceptions about blindness.



#WhiteCane #BlindMisconceptions #Choroideremia #InvisibleDisability
#Scarborough #Seaside #SeasideHoliday
#StephenJosephTheatre
#BrassedOff

Zac Shaw, whom I’ve written about before in my blog. (Please use search facility) Has been picked for Great Britain’s running team for the Paris 2024 Paralympics.
He’s a Paralympian!
He has Stargardt’s Disease and found out about this when he was 13.
So if you’re watching the games please look out for this young man and will him on with his endeavours.
Good luck Zac!
If you’re on Facebook you can see his video here below by clicking on the link