Posted in The Medical Stuff, Useful Information

So, what is it?

Posted on by One Vision
Clipboard with the words Keith story written on it
There are a few different types of macular problems.
Mine is genetic. I was born with this, although I wasn’t diagnosed until 44 years old. 4 and a half years ago. The diagnosis was macular dystrophy. So I am late onset and very lucky I had so long without symptoms that affected me.
Stargardts is the most common genetic macular disease. The one I’m most likely to have. I haven’t had genetic tests as of yet.
Please click on the link below for keiths story ☺
Posted in The Medical Stuff

Vitamin A and Carotenoids

Posted on by One Vision
Clipboard with a list of Vitamin A rich food to avoid
Carotenoids are the pigments that give vegetables and other plant products, their bright lovely colours.
Before your body can benefit from them nutritionally, it must convert them into retinoids. This process may be difficult for some people to do, including us with Macular dystrophy.
Because our eyes cannot process this and Vitamin A properly, it affects the light receptors, causing damage to the retina, leaving the macular full of Lupofusin, clogging up, making the waste hard to get rid of.
So light sensitivity happens, floaters from the rubbish floating around in there, and damage to the macular, causing the blurry spot that makes our central vision fade.
So supplements, like any extra vitamins you may take, or the food you eat have to be low in Vitamin A and Carotenoids. Which is impossible but my specialist just said as long as I’m not going mad ingesting carrots by the ton, it will help by keeping the damage to a slower pace.

The foods highest in vitamin A are:-

⚫ Carrots

⚫ Broccoli

⚫ Cantaloupe Melons

⚫ Grapefruit

⚫ Red Peppers

⚫ Pistachios

⚫ Liver

⚫ Dried Apricots

⚫ Oily Fish

⚫ Sweet potatoes

⚫ Mangoes

⚫ Tomato Juice

Posted in Funny Stories, How I'm Adapting

Not all doom and gloom

Posted on by One Vision
It isn’t all doom and gloom though. There are some funny moments now 4 plus years down the line.

Shouting the dog to come in when she’s already in.
Waiting at the bus stop and just hesitating enough as you are not 100% sure to put your arm out for the dark coloured van or one was a mini 😃

In a shop thinking, oh I need a sewing kit and its a cup when you pick it up. This is one of many.

Staring at something to make out what it is if you can’t pick it up is something I do everyday. My eyes seem to focus a second or two later..its like one of those magic pictures from years ago at times.

Thinking the dog is everywhere due to black blob.

Been shown a picture on a phone and saying ‘oh yeah’. Could be anything.