Category: Useful Information

As well as getting advice and chatting on websites, Facebook groups, and telephone support with people.

You can attend local sight loss support groups.

I’ve seen these advertised in doctors surgeries and hospital eye clinic notice boards. Be sure to have a look there.

The Macular Society has a list of groups. For Macula conditions specifically. You can find one in your local area, by entering your postcode in the search box on their website.

Obviously at the moment, they won’t be able to have them. But I don’t think it won’t be much longer till the groups open up again.

In the meantime. I do know that they have telephone support with some of the groups.

I used to attend one locally and hope to again after this virus has disappeared from us.

The group I attended was made up of varying eye conditions and severity. Different ages and circumstance. I found this groups poster in the hospital waiting room.

They have rang me to ask me how I’m doing now and again throughout the pandemic. Checking in with me.

I told them not to worry about me as I’m sure they had people who could either do with a chat or practical help in someway. I was fine.

Please click on the picture below to go to the Macular Society page to find one near you.

The Guide Dogs for the Blinds new scheme – buddy dogs. Brings a new friend into the lives of children with sight loss. By helping to develop their self-confidence, improve relationships and build a greater sense of trust, these dogs can have a hugely positive effect on your child’s wellbeing – and your family, too.

These dogs weren’t suited to being a guide dog. This means you cannot use them as a guide dog or enter premises, shops with the dog.

Please click on the link below for information.

Click here to go to the Guide Dogs website for information on Buddy dogs

A couple of books I’ve found with Stargardt disease as the story.

Seeing Light with Darkness

by Shane Crown

Synopsis

My life is filled with interesting stories from first grade all the way to present-day 2017—like how I lived with twenty-twenty vision until I was seventeen and that age I was diagnosed with age-related macular degeneration also known as Stargardt. I write about the person I was with vision, and I write stories about how I was after my visual disability. 

The distance between me and the cherry tree

By Paola Peretti

Synopsis

Mafalda is 9 years old and knows one thing. In 6 months she will lose her eyesight to Stargardts disease. The distance in which she can see the cherry tree next to her school, is how she measures her vision loss.