Category: Useful Information

A couple of books I’ve found with Stargardt disease as the story.

Seeing Light with Darkness

by Shane Crown

Synopsis

My life is filled with interesting stories from first grade all the way to present-day 2017—like how I lived with twenty-twenty vision until I was seventeen and that age I was diagnosed with age-related macular degeneration also known as Stargardt. I write about the person I was with vision, and I write stories about how I was after my visual disability. 

The distance between me and the cherry tree

By Paola Peretti

Synopsis

Mafalda is 9 years old and knows one thing. In 6 months she will lose her eyesight to Stargardts disease. The distance in which she can see the cherry tree next to her school, is how she measures her vision loss.

The RNIB has a search facility to find groups near you.

These groups are usually advertised on notice boards at hospitals android Eye centres so look out for these.

If you click on the picture below, it will take you to their search page.

Advice on difficulties people with vision loss face with wearing masks due to our Covid-19 situation. From the RNIB.