Posted in How I'm Adapting

Happy new year ☺

Woman blowing into party blower
Happy New year everyone ☺
This year it’s all about making visual memories for me, and to do and see the things I want to see as this does feel like a runaway train.
I also want to spend alot of time with people just because I worry I won’t remember their faces. Details are quite blurry now and have to stop myself doing the ‘starey’ thing.
As there isn’t a date or a timeline as docs can only give us an estimate which was 5 to 15 years from diagnosis for me.
I’m going into the year positive but also aware that the last few years my vision has declined.
It does usually plateau out after a period of decline I’ve been told so hopefully everything will be fine ☺
I’m still waiting to see the retinal specialist for my test results.
Posted in How I'm Adapting

Wavy distorted lines macular dystrophy

Slanted wavy words on white background. The words are Something new over the past few weeks has been happening which makes me totally not trust my eyes.

I only remembered today as I mentioned it to the consultant.
In other news… Something new over the past few weeks has been happening which makes me totally not trust my eyes.
I only remembered today as I mentioned it to the consultant.
And it’s this complete weirdness.
Apparently, it’s what normally happens.
It’s disturbing and frustrating at the same time as I don’t know if the writing is actually supposed to be slanted or not. I’m supposing it isn’t.
I stare at the screen and move it around, convinced it’s not me and it’s my phone.
I don’t like it.
I think it’s just me not believing it’s my eyesight. I literally cannot believe my eyes.
I’ve made this graphic to show you, but even making it, I’m not sure it’s slanted enough because it already looked slanted before I messed with it 😕
Posted in How I'm Adapting

Stress and sight loss

Prolonged stress deteriorated my eyesight faster than normal. Also, when first diagnosed I was eating vitamin A enriched food thinking they would help… WRONG… It’s the opposite.
In some situations you have to be a few steps ahead, or you can be slower doing things that take concentration than people with better eyesight.
I agree with all the points made here. Couldn’t have explained it better myself ☺

To see a very good explanation please watch…