Posted in How I'm Adapting, No category yet

Sunshine on a rainy day – Sunglasses

Sunglasses are very good to block harmful blue light, that affects the progression of condition. You also can get apps to pop on your devices with screens to filter this out.

Any little helps as long as to keep the eyesight we have.
This is why you will see me on an overcast day wearing sunglasses.
The light is sometimes still too bright. Just enough to make my eyes feel uncomfortable and will probably bring me alot of pain via headache or eye socket pain later on.
This is something I did pre diagnosis.
During my consultant appointment last September (2019). He told me that I had photophobia due to my condition and probably always had been but didn’t think anything of it.
This is where your eyes are super sensitive to light.
It has probably got progressively worse as the dystrophy began to show itself to me, 5 years ago.
So, if you see someone with sunglasses on and you think they are either trying to be ‘cool’, don’t shout over… ‘It isn’t that sunny love’..
just remember, it maybe because they’re are protecting themselves from discomfort whilst out and about, and preventing themselves from alot of pain later.
Posted in How I'm Adapting

Visual Impairment and social distancing

Hi everyone.
I do hope you are keeping well and safe.
The UK are still in partial lockdown and social distancing is still here for us all.
I’ve come across a article that maybe helpful to some whilst these measures are in place around the world for people out and about with Visual impairment.
It’s extra stressful when in a shop trying to keep away from people and the added factor of having to study items for longer whilst aware not to take too much time in the shop because others are queuing outside waiting for you to exit before they can go in.
Makes you flustered and made me buy yogurt instead of cottage cheese yesterday 😔.
That will be nice on a jacket spud won’t it 😔
Posted in How I'm Adapting

Quarantine and increasing sight loss

Going for a walk in Quarantine.

I now cannot walk the dog on long walks as I trip over her due to the side blind spot that shouldn’t be happening. Shorter walks I concentrate. This is why I had the tests. My eyesight is getting worse during lockdown. The last month of it anyway. I need more glasses, a new eye test, as these make me see. Literally are making me see now. Not just helping.
Glasses don’t take away the blind spots.
I’m now wondering if I will have to have more tests as I’m sure the ones I’ve had are now obsolete. Still waiting to go for the results of the last ones. I’m very down at the moment.
I said this blog would be truthful.
The fact I don’t have the results and that they maybe wrong now makes me think why do I need to know. Ignorance maybe bliss in alot of things.
I’m still positive.
I’m worrying for the future but I have to live for today.