Posted in Articles about my blog

Rare Disease UK Article

I have written an article for Rare Disease UK. Depicting my life with Macular Dystrophy.

The link is below if you care to take a look.

Link to the article

Posted in Macular Dystrophy explained, Useful Information

Two Blind Brothers – How people with Stargardts see

Stargardt Disease. The most common out of the Macular Dystrophy spectrum of conditions. Because of this, It’s most likely I have this problem.

I haven’t been genetically tested yet for which gene is causing my eyesight loss.

They know it’s Macular Dystrophy, but is yet unclear what sort.

This is a depiction of how the brothers see. Some people have grey/black blobs masking their vision, blind spots and floaters.

Facebook post by Two Blind Brothers

Sometimes you may see me tilting the phone or whatever I’m looking at. This is because of the tiny blind spots.

This is called eccentric viewing which came naturally to me early on.

You can have lessons in this from the low vision clinic or the Macular Society offer it too.

The eyes try to fill the blind spots so words or pictures are sometimes hard to make out or become the wrong word or image, with interesting results now and again.

I’ve wrote about this. If you go to my websites search box on desktop, you can search for anything you like including eccentric viewing.

Link to my website search page

Posted in Step around The World Challenge

My fundraising pack is here

My fundraising pack has come from the Macular Society today. Thank you Susie ☺

Fundraising pack of stickers, t-shirt, passport, newsletter and thank you note.
PICTURE DESCRIPTION picture of fundraising pack. Sticker passport, stickers, t-shirt, newsletter, thank you note.

I’ve filled some of my sticker circles up thanks to the lovely generosity of people already.

PICTURE DESCRIPTION Stickers put on passport card.

I will fill the steps stickers when I’ve completed my challenge.

I will wear my t-shirt with pride ☺ it will remind me what I’m doing this for.

VIDEO DESCRIPTION Picture of pack with cartoon image of me with long red hair with arms raised.

You betcha I’ve already got the Rocky IV training montage music ready for the last push around the Lake.