Posted in Hospital Appointments

My Hospital Appointment – Consultant

Photograph of trees with autumn leaves
Photograph of a Holly Bush with red berries
Photograph of trees in a park in autumn
Photograph of trees, by a path with autumn leaves on it
Well in an complete anticlimax and now like a cliffhanger episode, dallas style… I won’t get the results till after my ERG test and when I actually see the main man.
Today, I saw the lady who diagnosed me the first time I went to the eye centre.
Had the drops, had the visual acuity test, macular photography then went in to see her.
There is slightly more damage to my Macular which shows a hereditary Macular Dystrophy pattern. Which one that is unknown as yet. The most common is Stargardts Disease.
I haven’t had any results from the tests yet, so this was just a comparison with earlier macula photography.
There are some dystrophies that cause total blindness, I didn’t know this and today was an interim check up to keep an eye on things… Doctors words… not mine ☺ see what she did there.
So, I have to wait.
So the walk back was interesting. Emotionally.
She said there is nothing they can do with a genetic eye disease as yet.
If you ever win the lottery, then chuck some to the Macular Society. It’s the only way they can find a cure to stop this getting worse.
I was angry, and abit upset, and I’m frightened to be honest but at the moment ignorance is bliss.
But then after seeing a squirrel for a bit and meeting a lovely person I haven’t seen for a while and coming home without my gloves and hat, because I gave them to Dawn, who’s need is greater than mine, I loved my little old eyes again because they have lasted this long regardless, in quite an epic way really.
Posted in Hospital Appointments

My Hospital Appointment – Autofluorescence Test

Photograph of the eye centre hospital

Well, I’ve been to the first of my appointments this week and it was for autofluorescence.

So, now I can tell you what happens.

You have the eye drops to dilate your pupils. Then wait awhile for it to take affect.

It basically is popping your head upto a machine and then you focus on a little light by the side of it and then lots of flickering bright lights flash to take the photograph of the back of your eye. Each eye in turn.

So, my macula has been photographed now and will get the results when I go back to see the consultant in a few months.

If you go for this, don’t drive there and take someone with you if possible.

The light leaves your eyes with bright patches. The disc that I can only see at night was more pronounced masking my vision.

My right eye hurts slightly now. This is several hours later. This eye was the most uncomfortable because it\’s my worst eye. My left eye was and is fine with the procedure.