Posted in Glasses

Eye test appointment

So. I’ve been busy with something that’s cropped up. So haven’t had chance to write for a while.

I’ve got an opticians appointment this week. I’m overdue one. I go yearly for a check up. Last went July last year (2020)

I will have to get new glasses, as my stick? thingy has broken off anyway at the sides.

At the moment appointments are easy to get online at Boots.

Posted in Glasses

Booked an eye test

hand holding a mobile phone with Boots Optician web page on screen

Booked my eye test today.

Important to keep my sight going and eek out any help or improvement I can.
How I see it is… I’ve aways had this condition, even when I was growing inside my Mother, so I’m not mad at my eyes. They haven’t let me down. If anything they have let me do things and experience life independently for alot longer than most.
Alot of people with this condition don’t have that luxury. It shows itself to them when they are kids, so having later onset macular dystrophy is remarkable.
It isn’t anything I’ve done. Won’t have done anything different from those people who have difficulties from a very early age. Just luck of the draw I guess.
Will be interesting to see if the deterioration I know is there, means a different prescription. Whilst the ophthalmologist can detect the changes from me reading the Snellen chart, what can’t be considered by them is the tiny blind spot that makes C into O, E into an F etc.
All depends on where the spot has shifted. Whether I’m stressed, tired, been reading or too much light in my eyes.
I’m sure if I went to have an eye test everyday. There would be a different result from one day to the other.
There will be a time when the grey/black blob and the blindspots will overtake my current situation. But as for now, my good old eyes are hanging on in there… sort of ☺
Posted in Hospital Appointments

My Hospital Appointment – Consultant

Photograph of trees with autumn leaves
Photograph of a Holly Bush with red berries
Photograph of trees in a park in autumn
Photograph of trees, by a path with autumn leaves on it
Well in an complete anticlimax and now like a cliffhanger episode, dallas style… I won’t get the results till after my ERG test and when I actually see the main man.
Today, I saw the lady who diagnosed me the first time I went to the eye centre.
Had the drops, had the visual acuity test, macular photography then went in to see her.
There is slightly more damage to my Macular which shows a hereditary Macular Dystrophy pattern. Which one that is unknown as yet. The most common is Stargardts Disease.
I haven’t had any results from the tests yet, so this was just a comparison with earlier macula photography.
There are some dystrophies that cause total blindness, I didn’t know this and today was an interim check up to keep an eye on things… Doctors words… not mine ☺ see what she did there.
So, I have to wait.
So the walk back was interesting. Emotionally.
She said there is nothing they can do with a genetic eye disease as yet.
If you ever win the lottery, then chuck some to the Macular Society. It’s the only way they can find a cure to stop this getting worse.
I was angry, and abit upset, and I’m frightened to be honest but at the moment ignorance is bliss.
But then after seeing a squirrel for a bit and meeting a lovely person I haven’t seen for a while and coming home without my gloves and hat, because I gave them to Dawn, who’s need is greater than mine, I loved my little old eyes again because they have lasted this long regardless, in quite an epic way really.