Posted in Hospital Appointments

Eye Centre Appointment

I’ve been to my appointment to see the eye specialist.

This was at my local Eye Centre.

The Doctor referred me back to Opmathology after I seemingly got lost in the system during Covid-19 after March 2020. I had my last round of tests just one week before lockdown here in the UK.

I had the usual eye test. I was the same as I was before. This is distance.

Right eye 3 lines down. Left eye 4 lines down.

This is why I don’t drive.

Then I had the eye drops. They dilute your pupils so the doctor can see into the eye much better than without.

I had photography taken of my eye and then saw the consultant.

He looked into my eyes with the prism light and magnifying glass equipment.

We spoke about the tests I had had all that time ago. He said that the large swelling had disappeared on my retina.

I didn’t realise I’d had any I told him.

I explained that I needed cane training due to the difficulties especially at night and also increased falling.

He didn’t seem to have had any of the results. Not even the random field test I’d had in late 2022 either.

So he agreed that we couldn’t go into any certification without a recent field test so he gave me a yellow sheet to hand in to have an appointment sent to me for 4 to 6 weeks time.

The previous doctor said I was partially sighted.

So just waiting on that now.

All in all the appointment and the staff were amazing as usual. I was out very quickly.

A hospital waiting room with blue and light wood chairs in the foreground. Windows are in the background with a large yellow poster with text that reads. Worried about your vision? We're here for you.
PD 1 A hospital waiting room with blue and light wood chairs in the foreground. Windows are in the background with a large yellow poster with text that reads. Worried about your vision? We’re here for you.
A hospital corridor with chairs down the right hand side. Above double doors is a sign that reads Orthoptist.
PD 2 A hospital corridor with chairs down the right hand side. Above double doors is a sign that reads Orthoptist.
Posted in No category yet

Eye Clinic Referral

I spoke to a doctor some time ago this year about my unresolved appointments and tests I had quite a while ago now for my eye condition.

Since those 4 tests, the most recent in September 2022, which I still didn’t even know the results from that either. It was decided to be popped back on the waiting list as it seems I’ve gone by the wayside.

I got an email in June to say I’ve been referred. Since then I’ve recently filled in a form I received through patients knows best, to say I still want to stay on the list. A segment of the email is included in this post.

I can understand that through Covid-19 in 2020 I wouldn’t have been an emergency to receive any results as there isn’t anything anyone can do, as yet, to improve the Macular Dystrophy I have.

I wouldn’t want to be put before anyone with eye problems that have to be urgently seen to or operated on. So I’ve just lost myself too abit with this really and gave up.

Sometimes if there’s nothing that can be done, you think, what’s the point don’t you?

But due to last year bumbling about falling on the floor hurting myself, a noticible difference in my sight now (For a week I didn’t see a window above the bed on my holidays. It just appeared) and also, if I’m honest, my mental health wasn’t good at all. I eventually had a diagnosis for that which was quite hard to understand, but made alot of sense to me. I saw someone regularly about it for the last few years, it changed my life really. I’m in a much much better head space to sort life stuff out now which includes, going to see the eye consultant.

There’s also the thoughts on cane training. It’s taken a long time to face up to the fact that it maybe useful to be popped on that list, train and then when my eyesight gets progressively worsened, I’ll be ready.

Everyone reacts differently to their progression.

Everyone’s progression is different.

Ten years in and there’s still elements of this condition I cannot completely except. But I’m getting there.

Your referral has been sent
Dear Ms Catherine (Redacted) 

You were recently referred to a specialist by your local healthcare provider.

The office of the specialist will contact you.

You do not need to do anything at this stage, but to view and track this referral, please log into your NHS account with your NHS login email and password.
PD Text reads from email. Your referral has been sent
Dear Ms Catherine (Redacted)

You were recently referred to a specialist by your local healthcare provider.

The office of the specialist will contact you.

You do not need to do anything at this stage, but to view and track this referral, please log into your NHS account with your NHS login email and password.
Posted in Hospital Appointments

My Hospital Appointment – Consultant

Photograph of trees with autumn leaves
Photograph of a Holly Bush with red berries
Photograph of trees in a park in autumn
Photograph of trees, by a path with autumn leaves on it
Well in an complete anticlimax and now like a cliffhanger episode, dallas style… I won’t get the results till after my ERG test and when I actually see the main man.
Today, I saw the lady who diagnosed me the first time I went to the eye centre.
Had the drops, had the visual acuity test, macular photography then went in to see her.
There is slightly more damage to my Macular which shows a hereditary Macular Dystrophy pattern. Which one that is unknown as yet. The most common is Stargardts Disease.
I haven’t had any results from the tests yet, so this was just a comparison with earlier macula photography.
There are some dystrophies that cause total blindness, I didn’t know this and today was an interim check up to keep an eye on things… Doctors words… not mine ☺ see what she did there.
So, I have to wait.
So the walk back was interesting. Emotionally.
She said there is nothing they can do with a genetic eye disease as yet.
If you ever win the lottery, then chuck some to the Macular Society. It’s the only way they can find a cure to stop this getting worse.
I was angry, and abit upset, and I’m frightened to be honest but at the moment ignorance is bliss.
But then after seeing a squirrel for a bit and meeting a lovely person I haven’t seen for a while and coming home without my gloves and hat, because I gave them to Dawn, who’s need is greater than mine, I loved my little old eyes again because they have lasted this long regardless, in quite an epic way really.