Outer Retinal Atrophy
This was written on my follow up letter also, after I had my consultation with the specialist a few weeks ago.
I really cannot find out much about what this means and because the letter came afterwards couldn’t ask. I will have to wait until I see him again.
So really don’t want to put my findings here incase they aren’t correct.
Don’t think I want to know.
Will post at a later date about this when I find out.
Pigment epithelial detachment – PED Macula
As well as Macular Dystrophy, I have a Pigment epithelial detachment (PED) which means that there is fluid, drusen, tissue or blood filling up, making a detachment at the macula which is in the retina.
I need to find out if this will get worse or can be treated.
Mine has been observed in the right eye at the macula.
This is why my right eye is the worst for me and has been giving me problems. This is why I think the black blob appears sometimes.
I will ask about this in more depth when I see my consultant again and if this is related to my condition or just bad luck.
Still waiting now on an ERG and then appointment to go back to see my specialist again to see the results of all the tests.


