Posted in Hospital Appointments

My Hospital Appointment – Consultant

Photograph of trees with autumn leaves
Photograph of a Holly Bush with red berries
Photograph of trees in a park in autumn
Photograph of trees, by a path with autumn leaves on it
Well in an complete anticlimax and now like a cliffhanger episode, dallas style… I won’t get the results till after my ERG test and when I actually see the main man.
Today, I saw the lady who diagnosed me the first time I went to the eye centre.
Had the drops, had the visual acuity test, macular photography then went in to see her.
There is slightly more damage to my Macular which shows a hereditary Macular Dystrophy pattern. Which one that is unknown as yet. The most common is Stargardts Disease.
I haven’t had any results from the tests yet, so this was just a comparison with earlier macula photography.
There are some dystrophies that cause total blindness, I didn’t know this and today was an interim check up to keep an eye on things… Doctors words… not mine ☺ see what she did there.
So, I have to wait.
So the walk back was interesting. Emotionally.
She said there is nothing they can do with a genetic eye disease as yet.
If you ever win the lottery, then chuck some to the Macular Society. It’s the only way they can find a cure to stop this getting worse.
I was angry, and abit upset, and I’m frightened to be honest but at the moment ignorance is bliss.
But then after seeing a squirrel for a bit and meeting a lovely person I haven’t seen for a while and coming home without my gloves and hat, because I gave them to Dawn, who’s need is greater than mine, I loved my little old eyes again because they have lasted this long regardless, in quite an epic way really.
Posted in How I'm Adapting

Wavy distorted lines macular dystrophy

Slanted wavy words on white background. The words are Something new over the past few weeks has been happening which makes me totally not trust my eyes.

I only remembered today as I mentioned it to the consultant.
In other news… Something new over the past few weeks has been happening which makes me totally not trust my eyes.
I only remembered today as I mentioned it to the consultant.
And it’s this complete weirdness.
Apparently, it’s what normally happens.
It’s disturbing and frustrating at the same time as I don’t know if the writing is actually supposed to be slanted or not. I’m supposing it isn’t.
I stare at the screen and move it around, convinced it’s not me and it’s my phone.
I don’t like it.
I think it’s just me not believing it’s my eyesight. I literally cannot believe my eyes.
I’ve made this graphic to show you, but even making it, I’m not sure it’s slanted enough because it already looked slanted before I messed with it 😕
Posted in Hospital Appointments

Having my appointment with the eye centre today

Graphic depiction of the eye test screen with them words I cant see it written on white background
I will update this post when I have seen the eye specialist today.

I’m nervous but hopeful that the results of the tests I’ve been having won’t show anything I’m not expecting.

Still haven’t got my appointment yet for the ERG I’m supposed to be having but maybe they have enough information.