Posted in Useful Information

Hidden Disabilities Scheme – Sunflower lanyard

Please look into this if you have a hidden disability or knows someone that has.

Whilst I’m not there yet, I do feel that maybe if I had a badge with a sunflower on and people knew about the scheme then they probably knew why when in supermarkets I’m holding a box or packet upto my face trying to read the details.
Or size labels and prices, right up to my face ☺.
Or my phone. I use Samsung huge font. So you can imagine the size of the text. And this only works in a few apps or phone functions, not them all.
Giving change in shops, I will thrust a note at them rather than count change unless there isn’t a queue.
I don’t usually take my readers out because I’m very protective of them as they are improving the sight I have at the moment although they don’t taken away those blank spots that have appeared.
So, if you see anyone with this logo, be it a badge or a lanyard as they will need time for whatever reason, to get around, need their personal space, or time to see what they are looking at.
So if you see me, picking items up and putting them back down, because it wasn’t what I thought it was, it’s all to do with being able to ‘see’ it, feel and touch.
Holding stuff close to my face. I\’m not strange. It’s not something funny to laugh at. There is a reason for this.
My mum used to tell me off for picking things up.
Didn’t realise at the time ☺
So however frustrated you are for that little moment, just remember how frustrating it is for them permanently.
Posted in No category yet

Waiting to see Retina specialist now

Photograph of hospital Eye centre waiting room
Just waiting now for a letter to see the consultant again to find out all the results and if there is anything that can be done.
I must say. The NHS have been so brilliant at getting these tests done so quickly, and everyone I have met have been lovely and so nice. Explaining what was happening, was I OK?
What would we do without it. When waiting for an appointment, there is always a sign saying how many people missed theirs. Which will in turn affect people desperate to be seen and cost the NHS thousands of pounds each day, so if you can’t go ring them ☺ someone else could take your place.
Posted in Hospital Appointments, My Tests Explained

My Hospital Appointment – ERG test – Electroretinography Part 2

Photograph of a womans eye with white dot sensors around the eye. Electroretinography
So, this is sort of what an ERG ( Electroretinography) test is.
Did you wince? ☺
First of all you have some anesthetic drops popped in your eyes.
A cotton/hair thickness wire is then put to your eye and pads put on your face. Forehead and at each temple.
Around 5 wires run from your head to be plugged into a machine.
Then you have to look at the flashing chequered grid for sometime.
After this, dilating drops are put in your eyes.
Then you sit in the dark without doing anything to let your eyes become accustomed to the darkness.
The next machine is like the visual field test I had.
You place your chin and face into the machine, then for about 20 minutes, white light pulsing and flashes at intervals.
You have to stare at a small red light and not blink while it flashes. You get a countdown to the next set of lights so you can time your blinking.
After that, it’s done, so you are unplugged.
Felt like an eyelash was annoying me in both eyes but it wasn’t as bad as I first thought.
It was more uncomfortable with the bright light. Which I’m photophobic anyway now as light hurts my eyes, hence part of why I’m having these tests for.
This tests finds out the condition and health of the light sensors in your retina, By electrical responses.
They feel better now but still slightly painful 2 days later.