Posted in Progression updates

My progression so far… #3

My progression so far…#3

Previously

⚫ May 2015… At diagnosis. 20/20 best corrected (ie… With distance glasses)
⚫ 21st September 2017… 20/30 vision best corrected.
⚫ 27th September 2019…
My right eye best corrected, is 20/80.
My left eye best corrected is 20/60.
Haven’t had results yet from hospital. Still waiting, so same acuity stands. As I’m taking the hospital readings at the moment.

New additions

⚫ I’ve started wandering around with my reading glasses on again. I may need more soon. I’ve only had these since July last year (2020)… Approx 9 months.

⚫ It’s like I live in the crooked house. I’m certain windows, mirrors etc are on a slant. Even the floors. This now matches the slanted text I read.

⚫ The sweet spot I had that would appeared now and again has now gone. It was a very clear pinpoint with blurryness all around it. Then a split second later it would go back to how I see now. I was fascinated and thought those little moments were wonderful. You blinked and it was gone. Now it has.

⚫ When focusing without glasses my eyes cross. They are trying so hard. Photographs have been deleted because I never knew until seeing pictures I’ve taken. Now it makes me self conscious. I don’t want to see it. Maybe one day I will get used to that.

Here is my last progression update:-

Progression Update #2

Posted in No category yet

Covid-19 Vaccination – What to expect

White Tent. Covid vaccinations

I’ve had my vaccination today. Feel like I’ve been punched in the arm, but otherwise ok.

I do feel nervous about essentially, popping something back in my body, that I believe 100% had tried to kill me, physically and mentally, not so long ago, quite nerve-wracking. It’s been a hard slog getting back to full health.

Thankfully I can say I am now, better than ever and ready for anything.

Very straightforward. I went to a car park within a local supermarket grounds. You have to wear a face mask and sanitise your hands before going in. I gave my booking reference number. Read information sheet. Someone came to speak to me.

Everything was wiped down you came into contact with. The laminated information sheets, even the chairs.

They gave me a leaflet, a card with my name and vaccine name (AstraZeneca) and batch number. I was given advice about the recent news that AstraZeneca maybe causing blood clots, mainly in younger people, but the signs to look out for just in case. (Migraine type headache and swollen legs) Then I was taken into the second tent for the vaccination.

Asked what arm I wanted it in. I picked right, as I sleep on my left.

Then I had to wait 15 minutes to make sure I wasn’t having any immediate reaction.

My second dose is on the 25th June.

It’s amazing isn’t it. Probably the greatest humanitarian discovery in my life time. If someone hadn’t fathomed out this vaccine for us. We couldn’t stop the virus, and deaths. While it’s not going to get back to ‘normal’ anytime soon. We can be hopeful to get back some of our freedoms we all enjoyed in the past.

If you think. It wasn’t long ago people were dying of diseases and conditions we think nothing of or worry about today.

Posted in Research for a cure or treatment for us, The Medical Stuff

Research is at Risk, due to the Pandemic

Charities incomes have been hit hard by the pandemic and could set life-saving research progress back decades.

Many Charities that I have particularly highlighted on my blog, rely on funds and donations to help find treatment or a cured for Genetic / Hereditary eye conditions.

Read more about the meeting with the UK Health Secretary Matt Hancock by clicking on the link below.

Click here to goto The Macular Society Article