Posted in Before Diagnosis, Glasses

6 years ago.

Posted on by One Vision

This is a status I wrote 6 years ago when ignorance was still bliss.

It came up on my memories on Facebook today. I don’t use facebook anymore, apart from updating my One Vision page there.

I wasn’t concerned really. As I thought I would know if there was something seriously wrong with my eyesight. Like as in all of a sudden everything would go black.. I didn’t really realise at that time, there was so much of a sight loss spectrum inbetween.

I knew something was amiss, but just thought that it was down to me being in my 40s and my eyes had aged. Along with myself ☺

So this is really when the first inkling of any trouble with my eyesight presented itself.

So you see. This can happen to anyone. Don’t take your eyes for granted. I wasn’t aware anything at all was wrong before this instance.

PICTURE DESCRIPTION facebook status. Went to opticians. Got some doody glasses and referral to eye hospital. Not a good day for someone with an eye phobia.

Posted in Useful Information

Local groups for the Visually Impaired and Blind.

Posted on by One Vision

The RNIB has a search facility to find groups near you.

These groups are usually advertised on notice boards at hospitals android Eye centres so look out for these.

If you click on the picture below, it will take you to their search page.

Click here to take you to their search page for local groups.
Posted in The Medical Stuff

Stargardt Rare Disease

Posted on by One Vision

Stargardt Macular Dystrophy or Stargardt Disease is a Congenital and Genetic eye disease. The most common of the Macula Dystrophies and Inherited Retinal Diseases.

Having said that, It is thought that approximately only 1 in 8000 to 10,000 adults and children have Stargardt disease.

This is a rare disease.

I have a diagnosis of Macular Dystrophy. I’ve had no genetic testing as yet. This, being the most common, is suspected to become the likeliest form I have.

My son will be a carrier of the disease at the very least, as I have no ‘Healthy’ eye genes to give him from my side, So he will automatically get a mutated gene from me.

He seems OK though at the moment. He will be more likely to have no problems in the future, than the other option he has of having a macula condition.