Posted in Research for a cure or treatment for us

Good News!

Grey central disc covers the image of the sea and sky.
PICTURE DESCRIPTION Picture of a grey central disc covering an image of the sea and sky

A new drug to treat Stargardt disease has helped to slow down the progression of the condition in some patients, according to the latest results of a phase two clinical trial.

Pharmaceutical company Belite Bio is testing a new orally administered tablet for Stargardt and late stage dry age-related macular degeneration (AMD).

Read more below from the Macular Society website.

Link to Macular Society Website

Posted in No category yet

Enjoy the sunshine!

Cartoon girl has sunglasses on while the bright sun shines around her. She has a sad face.
PICTURE DESCRIPTION Cartoon girl has sunglasses on while the bright sun shines around her. She has a sad face.

I hope you’re all enjoying the sunshine.

Please remember to protect your eyes from the harmful rays though.

I always have my Cocoon sunglasses on or handy to protect myself from damage and the suns glare.

I do still love my fantastic mirrored sunglasses, (I still have them) but cannot wear those anymore, as Cocoons help my photophobia so much. I don’t get eye pain half as much nowadays.

Even if your peepers are 20/20. Don’t take them for granted.

The light from the sun can cause all sorts of eye conditions and make the ones you already have exacerbate.

There’s more information here below. A post from 2019, but still relevant today.

Link to Protecting your eyes in the sun post

Posted in Useful Information

My local Sight Loss Group

This is the amazing Wakefield District Sight Aid.

My local group that I’ve been part of for nearly a year now.

Like Jean, who is such a lovely lady btw, I met other people with sight loss during last years Sight loss Course (2022).This charity in my home city, does so much good for us all. I really appreciate the welcome everyone gave me last year entering that room. Not knowing how things would go. One of the best decisions I’ve ever made.

If there is a group near you, and you’re umming and arring, I would urge you to go.

Read Jean’s story here