Posted in Hospital Appointments

My last eye appointment

Woman in opticians office eye test chart
After my appointment last Thursday, I am now waiting for 3 more tests to be done.

A visual field test, some other one I can’t remember 😕, and a retinal photography at Halifax hospital.

I’ve never been to that hospital. My consultant wants me to have me to have some detailed macular photographs as I’m having more problems than last time I saw them.

A few tiny blank spots have appeared. Text goes missing, until I can find a ‘sweet spot’ when it appears after a while if I move my eyes around.

A dark blob, now and again, not often. To be honest, this shouldn’t be happening with the condition I have. As this black blob, as I call it, is in my right eye, right side, Peripheral vision.

Also, I asked about the weirdness with my eyes darting about and trying to focus if someone is close to me. I’m getting very self conscious about this. Nobody has said anything. But they must see it. The consultant said my eyes are trying to cope and this is why this is happening, but also a sign that they are deteriorating as this is a new phase.

He knows my macular is very thin, but wants to see how thin.

Least something is eh? ☺

After these tests have been done, he told me I will see him again in 3 to 4 months time to see what he thinks.

Now I’m not bad a seeing really, it sounds horrible but the past year these are the new, I won’t say difficulties, but they are annoying sometimes.

Posted in How I'm Adapting

Who’s gonna drive you home? – My decision to stop driving

3 months ago, I was told to stop driving after 29 years.

It was difficult, but due to anxiety, repairs and a few instances which got my heart banging, I waited to repair the car as I had a feeling this would be the case as I knew I had an appointment coming up in a few weeks.

Well I was told I shouldn’t be driving at my last appointment. I had a feeling I wouldn’t be safe to drive anymore. I can let it go now and think of all the lovely adventures I’ve had but will have some lovely ones on a bus. ..I’m sure 😊

Posted in The Medical Stuff, Useful Information

So, what is it?

Clipboard with the words Keith story written on it
There are a few different types of macular problems.
Mine is genetic. I was born with this, although I wasn’t diagnosed until 44 years old. 4 and a half years ago. The diagnosis was macular dystrophy. So I am late onset and very lucky I had so long without symptoms that affected me.
Stargardts is the most common genetic macular disease. The one I’m most likely to have. I haven’t had genetic tests as of yet.
Please click on the link below for keiths story ☺