Posted in Useful Information

Charles Bonnet Syndrome

PICTURE DESCRIPTION Portrait of Charles Bonnet in robes grey and green and regency grey curled wig. Cartoon woman with blonde hair and hat from the back looking at the photograph. Man (Ross) with goatee beard and leather jacket holding a white cane facing front.

There is a condition that can appear with eye conditions called Charles Bonnet Syndrome.

This causes your brain to fill in things you can’t see or hardly see.

This isn’t just the usual stuff us eye poorly people do come across regularly, it’s more extreme.

Myself recently was staring at a pram as I couldn’t believe what I was seeing. A dog in a pram, albeit a blurry one. This is normalish to me. My brain sometimes tries to fill in images and words that I cannot see properly. I’m very amused by it usually. CBS can be very frightening for some people though.

It is best to be aware of this if you have a sight problem, as it could trouble you and maybe make you think you are mentally ill if you haven’t heard of it. It’s completely normal. Your brain is trying to help you, apart from it’s not.

In 1760 Charles described a condition now called Charles Bonnet Syndrome  in which vivid, complex visual hallucinations (fictive visual percepts) occur in psychologically normal people. (He documented it in his 87-year-old grandfather, who was nearly blind from cataracts in both eyes but perceived men, women, birds, carriages, buildings, tapestries and scaffolding patterns.) Most people affected are with visual impairments, however the phenomenon does not occur only in those with visual impairments; it can also be caused by damage elsewhere in their optic pathway or brain.

Charles was 40 years old when he discovered this.

He was deaf from 7 years old, but also suffered from failing eyesight in later years.

Born in Geneva, he was interested in the natural world and science. His first published works on botany appeared when he was just 25. He then turned to be interested in psychology as his eyesight started to fail. It became more difficult to see the nature and all the beautiful wonders he loved so much previously. Which is why he became a naturalist.

I have a good friend Ross, who has this condition. Alongside his diagnosis of Diabetic Retinopathy, he is classified as Severely Sight Impaired.

He describes seeing flowers in place of peoples clothes.

He found about out it January 2022 after an eye operation due to bleeds on his eyes because of his diabetes. The blood vessels were starting to block out the sight.

His CBS doesn’t happen all the all the time. Now and again. Which is startling when he first experienced it. He doesn’t see it as much, but when he does it’s less of a shock now than at first, because he used to do a double take initially.

Posted in Useful Information

Alkeus Pharmaceutical Update

I’ve wrote about this research before. Here’s an update. Getting nearer to a possible treatment for Stargardt’s Disease ☺

Please click the link below to read more about this.

Alkeus pharmaceutical update

Posted in Useful Information

Be My Eyes and Rayban  

Meta and Be My Eyes have teamed up together and this looks to be going towards adding  glasses as an aid to help the blind and Visually impaired community.

This will enable to be ‘hands free’ especially significant if you have a Guide Dog or Cane with you, so your hands will be most likely full.

This will be enabled by Ray-Ban Meta smart glasses. AI and live  feed on a one way camera, to aid the utterly brilliant Be My Eyes volunteer’s to help the person using the application.

You will be able to call hands free by saying “Hey Meta, Call a Volunteer on Be My Eyes”

Be My Eyes is a useful tool I’ve written about before. It’s available as an app and connects people all over the world in many different languages. Whether you’re in the supermarket looking for a specific product and can’t see the writing or image, someone will describe and help you. I know I’ve bought that many orange looking too light, too dark, make up Foundations that I can count. So it would help me too. I would certainly look into these as my condition progressed. Especially good if it’s all too busy. Busy people, busy colours and too much that you can’t fathom what you’re seeing, if at all you can see anything.

Wanting help reading a letter, a pill packet, dropped items, describing a scene in front of  you. Anything you have difficulty with.

If you’d like to volunteer to help us poorly peeper people, please look onto the Be My Eyes website and sign up. It really is a valuable and rewarding experience for everyone involved.

I so hope these aren’t going to be staggeringly expensive like alot of the items with the word ‘Blind’ infront of it appear to be.

Let’s keep our fingers crossed, because after all we aren’t wearing or choosing them to be fashionable, we need tech to help us live a life that’s easier, less stressful and more inclusive than the past.

All on the same playing field. Not much to ask is it?

Below is a video and video description of someone using the Rayban Meta glasses.

VIDEO DESCRIPTION Woman with dark brown hair and red floral strapless dress places an album on a record player then goes to sit at a dressing table. In front of her is a large mirror and a jewellery box with lots of jewellery inside it.
As she speaks she holds up each earring. At the end she leaves her house and shuts the door.

If you have Facebook, click link below for the video if the announcement

Facebook link to announcement on Be My Eyes page