Posted in Research for a cure or treatment for us, Useful Information

Macular Society research

If you can spare anything or next time you think of doing a fundraiser. Please think to do it for this fantastic charity. The Macular Society.

To help find a much needed cure or even treatment for us with macular diseases.

We have to have hope there will be a breakthrough one day.

By donations. This is how they fund research into getting us/me a cure.

I personally would be very grateful for your help 🤗

Click here to take you to Macular Society Facebook Post

Posted in Research for a cure or treatment for us, The Medical Stuff

Research is at Risk, due to the Pandemic

Charities incomes have been hit hard by the pandemic and could set life-saving research progress back decades.

Many Charities that I have particularly highlighted on my blog, rely on funds and donations to help find treatment or a cured for Genetic / Hereditary eye conditions.

Read more about the meeting with the UK Health Secretary Matt Hancock by clicking on the link below.

Click here to goto The Macular Society Article

Posted in Research for a cure or treatment for us, The Medical Stuff

Stem cell research for Stargardt Disease

Research for a cure ☺️
At the moment, Stargardt’s, Macular dystrophy, is untreatable.
A number of novel interventions are currently under investigation, including stem cell therapies.
Stem cells are a special type of cell which, when put under the right conditions, can develop into many other types of cell including those found in the macular. It is hoped that new cells derived from stem cells can be grown in a laboratory to be transplanted into the eye to replace areas of dead or non-functioning cells.
Stem cells can be sourced from a number of places including blood, bone marrow, umbilical cord and fertilized egg cells.
Researchers are involved in the first ongoing stem cell trial for Stargardt’s. More research will need to be undertaken in the future to determine to what extent stem cell therapy might help improve vision for people with Stargardt’s and the other conditions know as Macular Dystrophies.
This is ongoing and will hopefully turn out to be a cure or treatment for Macular Dystrophies.
Until then, we have to protect our eyes from further deterioration by using UV and blue light blocking, polarized sunglasses, make sure we don’t take onboard too much vitamin A, but don’t deprive yourself, as we need Vitamin A for good health elsewhere. Just don\’t take supplements with this vitamin included. Vitamin A causes the build up of lipofuscin, as our eyes do not process the waste correctly, causing the central vision to fade.