Posted in How I'm Adapting, Progression updates, Useful Information

Visually impaired and gigs

One thing that I never thought about until I went to a gig since my eyesight started  really progressing a few years ago, was any problems whilst I was there.

I went to see Duran Duran (Standard. My faves since 1982) with my two friends so I thought I’d be fine.

One thing that I always like to do is go to the merch stand and get myself a tour t-shirt. I’ve seen them alot and have quite a collection.

I was stood there at somepoint when it was still light and realised that I couldn’t come and go when I pleased anymore anywhere around the hall when I wanted to. I knew I couldn’t just stroll away later and leisurely spend time looking around by myself when darkness fell.

I suppose what I’m saying is, if you are planning going to see any bands, be aware, especially if this is all relatively new and you’re experiencing a period of further sightloss and therefore adjustment. Being aware of certain things before you go, will make your enjoyment as good as before.

I was surprised really as I hadn’t given anything any thought.

When it’s light before the gig has started (This was an open air event) go for your merch. It’s easier to get back to where you are (and your friends also if you prefer taking someone) and also it isn’t as frightening watching the floor, the people and less stressful all round. Because I liked to do things by myself this is what I decided to do. I didn’t want to put my friends out even though they wouldn’t have minded.

Same goes with the drinks. Whilst you’re passing get a drink or drinks if going in rounds first. By extra  for later if you wish. Then when it’s dark or the lights are off you don’t have to move.

One thing I’ve stopped doing is drinking enough that I always need to find the toilets.  It’s better to stop at somepoint than struggle finding them and your way through people and whatever you cannot see on the floor or ending up in the wrong place .

I don’t want to be dragging friends out of a gig to the loo to help me at the moment. That will change though as I’ll need help later on.

Once I’d fathomed this out in my head, I really enjoyed myself. I grabbed on to my friends leaving after it had finished and everything was all good.

Obviously depending on what level sightloss you have depends on what plan you have. With a little forethought we can still enjoy things we used to do.

I’m still very lucky at the moment. Although the days of me wandering off now on my own in situations like that have gone.

Simon Le Bon stands on stage and 3 cartoon women, One with Black hair, One with brown hair and one with silver hair, stand with there backs towards the image with arms up.
PICTURE DESCRIPTION Simon Le Bon stands on stage and 3 cartoon women, One with Black hair, One with brown hair and one with silver hair, stand with there backs towards the image with arms up.
Posted in Progression updates

My progression so far… #3

My progression so far…#3

Previously

⚫ May 2015… At diagnosis. 20/20 best corrected (ie… With distance glasses)
⚫ 21st September 2017… 20/30 vision best corrected.
⚫ 27th September 2019…
My right eye best corrected, is 20/80.
My left eye best corrected is 20/60.
Haven’t had results yet from hospital. Still waiting, so same acuity stands. As I’m taking the hospital readings at the moment.

New additions

⚫ I’ve started wandering around with my reading glasses on again. I may need more soon. I’ve only had these since July last year (2020)… Approx 9 months.

⚫ It’s like I live in the crooked house. I’m certain windows, mirrors etc are on a slant. Even the floors. This now matches the slanted text I read.

⚫ The sweet spot I had that would appeared now and again has now gone. It was a very clear pinpoint with blurryness all around it. Then a split second later it would go back to how I see now. I was fascinated and thought those little moments were wonderful. You blinked and it was gone. Now it has.

⚫ When focusing without glasses my eyes cross. They are trying so hard. Photographs have been deleted because I never knew until seeing pictures I’ve taken. Now it makes me self conscious. I don’t want to see it. Maybe one day I will get used to that.

Here is my last progression update:-

Progression Update #2

Posted in Progression updates

My progression so far… #2

Image with text: 20/60 left eye, 20/80 right eye

My progression so far…#2

Previously

⚫ May 2015… At diagnosis. 20/20 best corrected (ie… With distance glasses)
⚫ 21st September 2017… 20/30 vision best corrected.

Latest eye test

⚫ 27th September 2019…
My right eye best corrected, is 20/80.

My left eye best corrected, is 20/60.

Still waiting for the test results so cannot update my acuity at the moment. So this one still stands.

Alot of Changes since I first made the #1 list.

New additions

⚫ A little more blurry now.

⚫ Peripheral vision is now compromised. Waiting for results of 3 tests.
⚫ Photophobia.
⚫ Blank peripheral spot that means I trip over the doggo when walking. Have to be extra careful.
⚫ Developing a squint when looking into a camera, photos taken. Don’t know if I have one while looking at someone.
⚫ Eyesight now not good enough to drive. Consultant advised me to stop driving, whichever I have. After my latest eye test results.
⚫ Feeling coins more.
⚫ Using hearing more before I cross over roads.
⚫ Don’t trust what I’m seeing alot of the time.
⚫ Dusting and washing pots is getting longer as I have to concentrate.
⚫ Cannot always see a photograph even when it’s made larger. Often have to be told what it is I’m seeing then sometimes it ‘clicks’.

Below is my first list.

My Progression so far #1