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Thank you for the lovely messages I’ve received 😘.

I will write about some of the questions I’ve been asked in the future through the facebook and here.

There are NO questions you can’t ask. I’m an honest person who isn’t offended and will not take it personally.

I want people to ask questions.

Then they can understand what\’s happening for me and others with the same condition.

There really isn’t much out there when you first get diagnosed. So hopefully someone will come across this website and it will help them, because I was in shock for quite sometime afterwards.

Primarily, this is to help people who are wanting information about progression and understanding of the disease. Then for me to track what’s happening as I need to get it off my chest.

Also can I just say, Macular Dystrophy, as with many eye conditions, will be a different experience to each person diagnosed.

My progression, (see how I’m using that word instead of deterioration 😉) will be quicker or slower to someone elses.

I say this because in the early days, that’s all I searched for. Looking how long I would be OK, but there isn’t an answer. It’s individual to you.

There will be positive posts, and then some that won’t be. A real reflection about how things are going.

This doesn’t mean I’m sat here depressed about it.

I just get on with it.

So thank you ☺

Zac Shaw has Stargardts disease and is hopefully going to join the Tokyo 2020 paralympics team next year in the GB team 🇬🇧

At the age of 13 he was diagnosed with Stargardts disease. So this inspiring young man just shows you what can be achieved by people with macular problems and I love watching the Olympics and paralympics especially cheering on people with the same problems I have hoping they will win us a medal ☺

I shall be certainly following him with interest and willing him on ☺

Please click on the Wiki link below for more information ☺

Click here to take you to the Wikipedia page for Zac Shaw