Posted in Any Questions?, How I'm Adapting

Questions I’ve received #2 – Bucket list

Another question I’ve been sent is. Have you or do you know when to the best time to make a visual bucket list?
I think that’s a very individual thing to do as all our eyesight will have different factors, levels and speeds we are coping with.
I’m waiting for my test results if I’m honest. Then I can make a decision.
It’s a fine line I suppose to not miss out on some of the things that I want to do.
I do feel like I’ve missed the boat (or plane) as I so want to go back to Greece. Just to add insult to injury here. I got peds (Pigment epithelial detachment) in both eyes.
Cabin pressure in a plane isn’t their friend and could potentially detach them completely.
I’m waiting on my test results still and have to ask the doc if I can fly safely. After Covid has stopped messing with us all of course.
I will do a post later about these.
I have yet to make a list. I know somethings I want to do. Sort of a peace making situation with my eyes. To properly do this stuff, then at least when my eyesight is worse I can say I’ve done them.
I don’t think that I could do the list on my own. It needs planning. Also, it’s a way of making memories with the people you love. To concentrate on their faces so you don’t forget them.
So, I think you will know when the time is right. I don’t feel it is yet. Although I do think the camping with stars one may have to be next year. Even in a B&B to walk somewhere dark, So that maybe the start. I don’t know.
Posted in How I'm Adapting

Here comes the sun.

Woman with sunglasses on. With sad face, as bright light is around her

So my eyes have done it again.

Been outside trying to garden and had to come inside because they feel like they are being scooped out by a melon baller.
It’s not the pain that stops me, but the fact it can turn into a headache. Or worse an ocular migraine later on.
So pills are taken straight away to prevent this… Hopefully.
Because the sun is shining, it’s causing problems. Alot more than last summer.
Does anyone have any sunglasses ideas that has macular dystrophy or photophobia?
I know the wrap around ones are supposed to be good but if possible would like some doody ones?
Blue light, glare filters and obviously 100% protection?
The other dilemma is they would have to be dark to keep my eyes from being infiltrated with light, but then I need to see.
If you would message me, that would be champion. ☺
But to be honest. In all probability, I will have to go with anything that can help as it’s stopping me do things.
Posted in How I'm Adapting

Pain in the eyes.

One of the things I’ve learnt this last week is I need to start giving my eyes a rest. From a screen, the light, the sun… Just give them a break sometimes.
Went out the other day with my sunglasses on and the eye pain started while I was out. Doesn’t usually happen with sunglasses on. So, this needs investigating. If anyone has any ideas please message me. Anti-glare, anti-sun, anti-blumming light, anti-blue light. 100% protection.
It’s getting ridiculous.
2 days later my eyes still hurt. They are better than they were though.
It stopped me going out and doing the garden as I just don’t want the pain to be worse.
So instead of doing the usual and going out there and doing it regardless of the consequences, I didn’t.
The other thing is…
My reading glasses are so blumming strong that when I went out I was finding it hard to see properly. So although now they are helping me more reading wise. They are buggering up, when they are off.
Woman with hand on hips. Long brown hair, glasses on and black jumper. Her eye are really magnified
So I will have to make sure I take them off well before I go out again. To do an experiment.
So much so that browsing in a shop seemed pointless and hardwork.
The main reason being, now we aren’t supposed to pick items up in shops, because of the Covid, it’s sometimes impossible to tell what they are.
I relied on picking some stuff up, to see. Sometimes as soon as you pick it up you know by touching what it is.
As in, somethings don’t seem what they are. However long you stare at them. Like the squashy sewing kit that I thought was a mug. So as soon as you pick it up you sort of go… ‘ah…’
Women with long brown hair with back facing you. Looking at a bookshelf with a question mark above her head
So we will see what happens.