Author: One Vision

An honest, warts & all sightloss blog about living with a rare genetic eye condition, Macular Dystrophy, Stargardt's Disease. To track how this progresses in myself. Hopefully help others & bring awareness. Let's see what happens next...
Posted in Glasses

Eye test check up

Posted on by One Vision
My local Boots opticians

A letter has come from Boots. I last went there for an eye test in July 2020. They told me to come for yearly check ups from now on.

I will see what is going on first with my eyes when I visit the hospital this week.

Then I will book an appointment afterwards. I’m reckoning Boots Opticians may think I will become a good customer ☺

I won’t be surprised if I need new reading glasses. I’ve touched on this subject in recent posts.

This may seem an inconsequential thing to blog about. But, I’m treating this blog like a diary of events to track my own progression throughout this condition.

Please remember. Everyone’s progression with this condition will be faster, slower, earlier or later. This has taken me 6 years to get to the point I’m currently at. Everyones life with this condition will be similar, but different.

Posted in How I'm Adapting

“But there doesn’t look anything wrong with your eyes”

Posted on by One Vision
Close up of my green eye facing towards you.

No. There doesn’t.

As you can see from a photograph of my eye above. They look perfectly healthy.

You cannot tell by appearance. What’s going wrong in there is internal. At the back, inside the retina.

I am getting very conscious though. That while they look healthy, for the first time, they are starting to show signs of the trouble inside.

Not on the surface.

If I look at people too long, either listening to them speaking or my eyes are trying their best to focus. They dart from one of your eyes to the other. I can’t control this.

Some days I’m OK. But if I’m tired or my eyes are sore because of the light, they will do this.

My right eye is 20/80 at the moment. It’s also the eye that has the peripheral problem, which is why I’m waiting for a Glaucoma field test appointment.

This is the reason I’ve had the 3 tests. Along with the escalating eye sensitivity (Photophobia) I have.

These are the 3 tests that I’m waiting for…

ERG (Electroretinography)

Autofluorescence.

Vision Field test.

I’m still waiting to see the consultant to get these results at the moment.

My eyes CAN’T take having a peripheral problem. It already has a central vision problem. So yeah… Are you thinking what I’m thinking?

This eye squints. When I take my glasses off. Or try to take a photograph, close up.

I’m trying to not be self conscious about it and this condition will NOT take anymore of my self confidence away. I’m quite adamant about that. It will NOT cause me any added problems outside of my eyeballs. Mentally. Enough has and will be taken away from me because of this condition.

So. Whilst my eyes look healthy. There is alot going on inside them. Watch me long enough and you will begin to realise.