Posted in Step around The World Challenge

My fundraising pack is here

My fundraising pack has come from the Macular Society today. Thank you Susie ☺

Fundraising pack of stickers, t-shirt, passport, newsletter and thank you note.
PICTURE DESCRIPTION picture of fundraising pack. Sticker passport, stickers, t-shirt, newsletter, thank you note.

I’ve filled some of my sticker circles up thanks to the lovely generosity of people already.

PICTURE DESCRIPTION Stickers put on passport card.

I will fill the steps stickers when I’ve completed my challenge.

I will wear my t-shirt with pride ☺ it will remind me what I’m doing this for.

VIDEO DESCRIPTION Picture of pack with cartoon image of me with long red hair with arms raised.

You betcha I’ve already got the Rocky IV training montage music ready for the last push around the Lake.

Posted in Research for a cure or treatment for us

Gene editing Stargardt’s Disease

Latest groundbreaking research into gene editing for Stargardt’s Disease.

Link to Macular Society Facebook Post

Hopefully this will slow progression of the faulty gene or potentially stop it in it’s tracks altogether. 🙏 🤞

The most common form of the group of Macular Dystrophies.

This has been completely funded by Macular Society and RetinaUK.

Please help me, to help them succeed! ☺

My fundraising page for Macular Society

Posted in Research for a cure or treatment for us

Macular Society research

Interesting video about the latest research going into finding out more about Macular Dystrophies. So a cure or treatment can be found for us.

Click link for video