An honest warts & all sightloss blog. I'm living with Macular Dystrophy. To track my progression and hopefully help others. What will happen next?…
Author: One Vision
An honest, warts & all sightloss blog about living with a rare genetic eye condition, Macular Dystrophy, Stargardt's Disease. To track how this progresses in myself. Hopefully help others & bring awareness. Let's see what happens next...
Sometimes you may see me tilting the phone or whatever I’m looking at. This is because of the tiny blind spots.
This is called eccentric viewing which came naturally to me early on.
You can have lessons in this from the low vision clinic or the Macular Society offer it too.
The eyes try to fill the blind spots so words or pictures are sometimes hard to make out or become the wrong word or image, with interesting results now and again.
I’ve wrote about this. If you go to my websites search box on desktop, you can search for anything you like including eccentric viewing.
PICTURE DESCRIPTION Picture of girl with red hair stood up with question marks around her head.
This blog isn’t just about me rambling on. It’s about you lot as well.
The sighted people, the people within the Macular Dystrophy rainbow of conditions, the family and friends that have a loved one with this condition. Each and everyone of you that read, follow, like, message me or comment, I’m so thankful for you each and every one of you. Means alot! 💜
I know if you haven’t got this condition and reading this blog to understand more due to a loved one having this, or you have this condition yourself, it is hard to understand. Hopefully by reading this blog, it’s gives you some insight to what we are dealing with here.
All of you have really stuck in there. We are all learning together as we go on.
Please remember though. Everyone is different. This may not be the way for some people with exactly the same condition as myself. There will be similarities and alot of ‘yeah, I do that’.
The progression maybe further on after 7 years than me, or maybe less. When I first googled for information (don’t Google ☺) I was hell bent on seeing how other people were coping years later. Obsessed. What their acuity was? Did you go blind? etc.
I’ve learnt since then, all that doesn’t matter. You can’t judge it. All you can do is hope for a slow progression of the condition. With long periods of plateau.
I also really love hearing from you! You are all helping me personally by being here.
Do you want me to tell your own story here? It maybe useful to hear another story other than myself, or are you doing a sight loss fundraiser maybe? Or have your own similar blog you’d like to promote so we can spread the word and gain more awareness for us all? Let me know. I will happily write up a story introducing you. Please give me a message if you fancy it and we can work something out.
Also. If there’s any questions you want to ask if you don’t understand anything, something to have me answer personally, Q and A style (no question is a daft question) and no question is off limits.
Want something covered here? Let me know.
So message me or comment below with your questions and I’ll post a questions blog up about them. I will just use your first name or if you prefer you can be anonymous.
One Vision Blog 