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Eye Clinic Referral

I spoke to a doctor some time ago this year about my unresolved appointments and tests I had quite a while ago now for my eye condition.

Since those 4 tests, the most recent in September 2022, which I still didn’t even know the results from that either. It was decided to be popped back on the waiting list as it seems I’ve gone by the wayside.

I got an email in June to say I’ve been referred. Since then I’ve recently filled in a form I received through patients knows best, to say I still want to stay on the list. A segment of the email is included in this post.

I can understand that through Covid-19 in 2020 I wouldn’t have been an emergency to receive any results as there isn’t anything anyone can do, as yet, to improve the Macular Dystrophy I have.

I wouldn’t want to be put before anyone with eye problems that have to be urgently seen to or operated on. So I’ve just lost myself too abit with this really and gave up.

Sometimes if there’s nothing that can be done, you think, what’s the point don’t you?

But due to last year bumbling about falling on the floor hurting myself, a noticible difference in my sight now (For a week I didn’t see a window above the bed on my holidays. It just appeared) and also, if I’m honest, my mental health wasn’t good at all. I eventually had a diagnosis for that which was quite hard to understand, but made alot of sense to me. I saw someone regularly about it for the last few years, it changed my life really. I’m in a much much better head space to sort life stuff out now which includes, going to see the eye consultant.

There’s also the thoughts on cane training. It’s taken a long time to face up to the fact that it maybe useful to be popped on that list, train and then when my eyesight gets progressively worsened, I’ll be ready.

Everyone reacts differently to their progression.

Everyone’s progression is different.

Ten years in and there’s still elements of this condition I cannot completely except. But I’m getting there.

Your referral has been sent
Dear Ms Catherine (Redacted) 

You were recently referred to a specialist by your local healthcare provider.

The office of the specialist will contact you.

You do not need to do anything at this stage, but to view and track this referral, please log into your NHS account with your NHS login email and password.
PD Text reads from email. Your referral has been sent
Dear Ms Catherine (Redacted)

You were recently referred to a specialist by your local healthcare provider.

The office of the specialist will contact you.

You do not need to do anything at this stage, but to view and track this referral, please log into your NHS account with your NHS login email and password.
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An honest, warts & all sightloss blog about living with a rare genetic eye condition, Macular Dystrophy, Stargardt's Disease. To track how this progresses in myself. Hopefully help others & bring awareness. Let's see what happens next...

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