A couple of books I’ve found with Stargardt disease as the story.
Seeing Light with Darkness
by Shane Crown
Synopsis
My life is filled with interesting stories from first grade all the way to present-day 2017—like how I lived with twenty-twenty vision until I was seventeen and that age I was diagnosed with age-related macular degeneration also known as Stargardt. I write about the person I was with vision, and I write stories about how I was after my visual disability.
The distance between me and the cherry tree
By Paola Peretti
Synopsis
Mafalda is 9 years old and knows one thing. In 6 months she will lose her eyesight to Stargardts disease. The distance in which she can see the cherry tree next to her school, is how she measures her vision loss.
One Vision Blog 