Posted in How I'm Adapting

Happy new year ☺

Woman blowing into party blower
Happy New year everyone ☺
This year it’s all about making visual memories for me, and to do and see the things I want to see as this does feel like a runaway train.
I also want to spend alot of time with people just because I worry I won’t remember their faces. Details are quite blurry now and have to stop myself doing the ‘starey’ thing.
As there isn’t a date or a timeline as docs can only give us an estimate which was 5 to 15 years from diagnosis for me.
I’m going into the year positive but also aware that the last few years my vision has declined.
It does usually plateau out after a period of decline I’ve been told so hopefully everything will be fine ☺
I’m still waiting to see the retinal specialist for my test results.
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An honest, warts & all sightloss blog about living with a rare genetic eye condition, Macular Dystrophy, Stargardt's Disease. To track how this progresses in myself. Hopefully help others & bring awareness. Let's see what happens next...

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