I’ve found out what my tests are I’m having.
Got a follow up letter and appointment for this coming Tuesday today.
That was quick, and a bit unsettling if I’m honest.
I don’t really understand all the medical terms but, Right eye PED at macula (looked like a little hole dip in the layer) and both eyes show outer retinal atrophy.
The test I am having on Tuesday the 1st October is for Autofluorescence
I also have one on the 3rd of October for a visual field test.
Then I’m waiting for an appointment for an ERG.
My right eye best corrected, (which means with distance glasses ) is 20/80. 20/60 with pinhole.
My left eye best corrected is 20/60. 20/50 with pinhole.
This is a change, from the 20/20 vision (corrected) when I was first diagnosed four and a half years ago. 20/30 2 years ago.
I feel worried and a bit sick if I’m honest.
It’s happening. This is really happening. Quicker than I thought it would.

